A few weeks ago I wrote about my realization that my son Mack probably has Attention Deficit Hyperactivity Disorder (ADHD). I thought some of you might like an update on how the situation has progressed. For those of you who have contacted me to ask me how things are going, thank you for your thoughtfulness and I hope you don’t mind getting the scoop via blog post.
First, I thought I’d write about the process of diagnosing Mack.
I was convinced that Mack had ADHD within about 30 seconds of finding my first web page about the disorder. However, it turns out that medical professionals require a little more than a “his Mommy says so” before they will diagnose your child. So at the end of November, we began the process of having Mack evaluated for ADHD. The first step was that I went in, without Mack, to meet with a pediatrician. She asked me a lot of questions, and I told her what I’d observed. At one point I said, “I know kids are usually diagnosed earlier than this, but…” The doctor interjected, “But he’s gifted, right?”
I was impressed that she’d figured that out just from the anecdotes and observations I told her, but it seems that Mack’s case was “textbook” in a lot of ways. The doctor was particularly able to recognize it because, she told me, she has a gifted, ADHD son of her own. We discussed things further and I found, to my embarrassment, that I made use of the box of tissues she’d put at the edge of her desk. I don’t consider myself a big crier. But when she talked about the pain that ADHD kids go through, being criticized and misunderstood, I couldn’t help myself. The good news was that the doctor was sure that we would be able to help Mack.
To diagnose a child with ADHD, medical professionals have specific guidelines for what they need to see. The short version is that they need to know that symptoms started at a young age, that they have continued consistently, and that they are exhibited across multiple environments (home, school, sports). These symptoms also must be shown to be having a negative impact on the child’s life. (So I guess if you’re a kid who can’t sit still, talks all the time, can’t sleep, is losing friends, is unable to finish schoolwork, and fights with people…but it isn’t negatively affecting your life at all…you don’t have ADHD.)
The doctors learn whether these conditions are true by having various adults fill out a form indicating how often they see certain tendencies and behaviors in the child. The form looks for ADHD, and it also screens for other disorders that often come with it – like depression, anxiety and behavioral problems. The questions range from “Does the child often lose things necessary for tasks and activities?” to “Does the child feel useless and inferior?” to the delightful “Is the child physically mean to animals?”
In Mack’s case, we had six adults fill out the assessment. Byron and I each did it, separately, and then we had four of Mack’s teachers fill it out. (I considered sending one to Mack’s abusive football coach from the fall, but thought better of it. Ha ha.)
When I initially asked the teachers to fill out the form, they each pretty much had the same response. It was something along the lines of, “Happy to help…but I don’t think Mack has ADHD.” Then the forms came back and three of the four teachers had answered enough “yeses” to indicate that Mack did actually meet the requirements for ADHD. Even if they liked Mack, and didn’t think he was overly disruptive, they had to answer yes when they read the specific questions.
Well, except for his current Signet teacher. (Signet being the pull-out gifted program for fourth and fifth graders.) She has a watermelon-sized soft spot for Mack. As the pediatrician put it, later, when we were going over the responses. “Well this one just thinks he’s a saint.” Softy.
After all the forms were done, the pediatrician scored them, and Byron and I went in for another meeting. At that time the doctor felt she had enough information to preliminarily diagnose Mack with ADHD. Five of the six diagnostic forms confirmed it. The good news was that none of the forms screened positive for anxiety or depression. That means we had, hopefully, caught the problem before it could really get going on Mack’s psyche. (I wasn’t surprised to see that Mack wasn’t suffering from self-doubt. He recently wrote a poem about the three most awesome things in the world: Christmas, football and Mack.)
Also good news – there were no indications that Mack suffers from any behavioral disorders. I was relieved. I always tell my kids I love them and will always love them no matter what, but I am hoping never to have to explore the outer reaches of that promise as, say, the weeping mother of the defendant in a serial murder trial.
At this point, our pediatrician was ready to see Mack himself. He came in for an appointment and she gave him a thorough evaluation to exclude any physical concerns from being the reason for his issues. Apparently, vision or hearing problems can look a lot like ADHD, as can heart problems. Mack checked out healthy, and the doctor talked with him for a while and then told us that she was making the call to diagnose him with ADHD.
I was…happy? Not happy. But not sad, either. When you see your kid struggling, it is actually a relief to think that it is something that can be fixed. Or, if not fixed, at least managed. So I guess mostly I felt hopeful, that knowing this “officially” about Mack would lead to a better future for him, and for all the people who have to deal with him…because, like Christmas and football, Mack is loud, nerve-wracking and exhausting…but also awesome.